Inserting, removing, and checking the placement of the feeding tube, while not fun, is also not terribly difficult. We have been participating in feeding him for a couple of weeks, and Meade inserted a new feeding tube today. She did a great job. The insertion doesn't seem to hurt him, but it does elicit a series of coughs and sneezes. We find some comfort in any reaction that he has, even if it signals displeasure. The best part of removing the feeding tube is that we get to see Henry's unobstructed beautiful face.
We are also now quite busy trying to arrange for the care that he needs after we leave the hospital. Many people are willing to help us with certain aspects of this, but we need to assemble the master plan ourselves.
Henry had a great day. He enjoyed getting to spend a few quiet hours in the arms of his grandparents.
Photos from today